Have I improved since my last post? I dunno.

As the experts recommend – you should reboot IF:

  1. You can’t access memory- or you’re having memory leaks
  2. You’re performance is too slow
  3. You have low-level error messages
  4. Some of your applications are NOT responding
  5. You’re freezing up
  6. You need to fix your bugs.


These all seem to apply


The glimmer I saw a few months ago has turned pretty murky lately. It seems the worse I feel – the more I learn- and then, I feel worse! Does that even make sense?

My cognitive issues don’t seem worse – but they are no better. Muscle and tendon pain is a lot WORSE – even after bilateral bursa steroid injections. Torn tendons, Tarlov cysts, spinal tumors, sacroiliac pain is off the charts most days. Lately, peripheral neuropathy too. I’m working with a PT- but I’m somehow going nowhere- so I’m putting it on hold for now.

I’m going to share some post sepsis statistics and facts with you- just in case this happens to you too.

Minnesota Hospital Association:

Sepsis survivors have impaired quality of life as long as 5 years.

JAMA:

Most survivors are left with major new deficits- both functional and cognitive.

NEJM:

Patients who survive have a higher risk for mortality for at least 4 years.

CNN

Survivors are left with major memory problems and physical limitations for years after their initial infection.

NEJM:

There are more than 1.7 million cases of sepsis every year in the US. Survivors often face long term effects post-Sepsis, including amputations, anxiety, memory loss, chronic pain, fatigue, disabling muscle and joint pain, and more……

NIH:

Neurological complications of sepsis symptoms include: polyneuropathy and myopathy. May include organ failure, damage to peripheral nerves and skeletal muscles.

CDC: Long term effects

Insomnia, Nightmares or vivid hallucinations, disabling muscle and joint pain, decreased cognitive function, loss of self-esteem, organ dysfunction, amputation.

Now you know why I need a reboot. Cuz this is not going so well. I need a new plan. So I’ll use SPRING as a springboard.

It’s a time of rebirth for body and soul, and hopefully, recovery.

“Spring is a natural resurrection, an experience in immortality.” Henry David Thoreau

Later,

I have to work on a new plan

C

11 Comments

  • Marytaylr Posted March 25, 2019 3:01 pm

    So sorry you’re struggling still. Glad you’re still with us and pray better days are ahead for you.

    • mm
      Carol Miletti Posted March 26, 2019 1:00 am

      Thanks for the good wishes. I plan on getting through this tough spell- it’s only a matter of how fast

  • laurie england Posted March 25, 2019 11:48 pm

    Little buddy, You will get through this. You are the strongest woman I know!!! I will keep praying for you n you are always in my thoughts. Love you girl!!!❤

    • mm
      Carol Miletti Posted March 26, 2019 12:58 am

      Thanks Little Buddy

  • Cathy Kladis Posted March 27, 2019 9:39 am

    Sorry you’re going through this but we Zebras are tough!! We have to be. My thoughts and prayers are with you hoping for better days. God bless!!

    • mm
      Carol Miletti Posted March 29, 2019 6:47 pm

      Thank you Cathy. Every day is a new day.

  • Laura Cada Posted March 27, 2019 10:50 am

    I understand 100%!!!! It has been 1 year since I had severe sepsis an was in the ICU for week. It was horrible. And it took so long to get to 50% better. I know you can do this because I never thought I could. I gave up so many times. Got angry so many times and cried so so many times. It is a lot of 2 steps forward and 3 steps back. Which makes UT seem impossible to get anywhere and have any progress. But I promise you it can be done. I am living proof. I love you and I understand beautiful lady!

    • mm
      Carol Miletti Posted March 29, 2019 6:49 pm

      Laura – I know it’s hard. One day I yelled – ‘I finally think I’m better’. Hubs looked at me like I was crazy! The next day I couldn’t get out of bed

  • Sue Posted March 27, 2019 11:52 am

    Always thinking of you, Carol. I admire you so much and will keep willing that juju to find its way up to you.

  • Angela Bush Posted March 27, 2019 11:52 pm

    Try walking, cycling to improve memory the oxygen and increased blood flow helped me within 4 months plus singing in choir also helped…I couldn’t believe the improvements!

    • mm
      Carol Miletti Posted March 29, 2019 6:52 pm

      Angela – I am walking and cycling. They help provide ‘lotion for motion’- but then I have to nap for at least 2 hrs because my legs are always so fatigued. No way could I ever sing in a choir – Sr Paul kicked me out of choir in HS – ‘ dear, you have many talents – but singing is NOT one of them’

Add Comment

Your email address will not be published. Required fields are marked *

Subscribe and get blog updates!