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We are THANKFUL!

by Carol Miletti November 25, 2020 0 0

I would like to share my reasons to be thankful in spite of everything going on. I’m typically a very...

by Carol Miletti October 30, 2020 11 0

I’ve spent the week drawing links between Primary Immunodeficiency, COVID-19, Autoimmunity and Sepsis. Except...

by Carol Miletti August 1, 2020 6 0

As I was thinking about what I wanted to share on my 2 year Sepsis Anniversary- I started having some very dark...

by Carol Miletti July 28, 2020 4 0

I first met Mandy several years ago at an IDF Conference. Of course, Mandy was in her LBD (Little Black Dress) for...

by Carol Miletti May 1, 2020 0 0

“We must be willing to let go of the life we planned so as to have the life that is waiting for us” Joseph Campbell...

by Carol Miletti April 27, 2020 0 0

A PIDD patient living in New York during the Pandemic Joanna has years of experience living with rare disease and...

by Carol Miletti March 26, 2020 0 0

I started writing this last week when I couldn’t stop crying. I was not crying for myself – but, for our...

by Carol Miletti February 24, 2020 1 0

After speaking with 4 PI patients – I learned how different their flu stories are. Sharing with you to compare...

by Carol Miletti December 22, 2019 2 0

Why am I looking forward to Santa? It’s not for presents – it’s for spending time with family and being...

by Carol Miletti July 31, 2019 4 0

So this is where and when it all started for me – exactly 1 year ago today. I was at Mayo Clinic for routine...

by Carol Miletti July 29, 2019 0 2

Did you go on vacation? Make the family picnic? Take the road trip? If you did – how did it go? Were you able...

by Carol Miletti June 28, 2019 0 0

Dear Rare Disease Patient, Whether it’s Primary Immunodeficiency, Myositis, Lupus, MS, RA or any of the delightful...