My 1 year Sepsis Anniversary- today I’m celebrating ME!
So this is where and when it all started for me – exactly 1 year ago today. I was at Mayo Clinic for routine...
Read moreHow has summer been so far?
Did you go on vacation? Make the family picnic? Take the road trip? If you did – how did it go? Were you able...
Read moreRare Disease, Summer Fun and Expectations
Dear Rare Disease Patient, Whether it’s Primary Immunodeficiency, Myositis, Lupus, MS, RA or any of the delightful...
Read moreWhere have I been lately?
I’ve been in hiding. I had 1 week at Mayo in May and I came home with HOPE. Even though I didn’t like any of the new...
Read moreIDF National Conference 2019!
Feeling a bit nostalgic this evening as I watch my Zebra buds checking in to The IDF National Conference. I’ve been...
Read moreSometimes, I don’t know
What I should be writing about. I don’t want to scare you into thinking that ALL the things that have happened to me...
Read moreTHE FLU – are we out of the woods yet?
Of course – the answer is NO – not by a long shot. Any chance you’ve had the flu twice this year? If so...
Read moreIt’s time to Reboot!
Have I improved since my last post? I dunno. As the experts recommend – you should reboot IF: You can’t access...
Read moreToday is Rare Disease Day
Let’s celebrate YOU and me today. Remember how you were sick for so long and no one had any idea what was wrong? You...
Read moreDear Me- I’m just not feeling it
Today I’m writing from a deep place- one that I’m seldom in. First of all – please don’t think I’m depressed...
Read moreFLU – It’s getting bad out there
Have you had your flu shot yet? If not – NOW is the time. What is flu? A CONTAGIOUS respiratory illness caused...
Read moreRecovery- A Glimmer of Hope
Sometime in the past 10 days- I began to see a glimmer of hope. Is this real- as in – am I finally improving?...
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