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Wash your Hands!

by Carol Miletti 12 days ago 0 0

I started writing this last week when I couldn’t stop crying. I was not crying for myself – but, for our...

by Carol Miletti February 24, 2020 0 0

After speaking with 4 PI patients – I learned how different their flu stories are. Sharing with you to compare...

by Carol Miletti December 22, 2019 2 0

Why am I looking forward to Santa? It’s not for presents – it’s for spending time with family and being...

by Carol Miletti July 31, 2019 4 0

So this is where and when it all started for me – exactly 1 year ago today. I was at Mayo Clinic for routine...

by Carol Miletti July 29, 2019 0 2

Did you go on vacation? Make the family picnic? Take the road trip? If you did – how did it go? Were you able...

by Carol Miletti June 28, 2019 0 0

Dear Rare Disease Patient, Whether it’s Primary Immunodeficiency, Myositis, Lupus, MS, RA or any of the delightful...

by Carol Miletti June 27, 2019 10 0

I’ve been in hiding. I had 1 week at Mayo in May and I came home with HOPE. Even though I didn’t like any of the new...

by Carol Miletti June 20, 2019 6 0

Feeling a bit nostalgic this evening as I watch my Zebra buds checking in to The IDF National Conference. I’ve been...

by Carol Miletti May 11, 2019 6 0

What I should be writing about. I don’t want to scare you into thinking that ALL the things that have happened to me...

by Carol Miletti March 29, 2019 0 0

Of course – the answer is NO – not by a long shot. Any chance you’ve had the flu twice this year? If so...

by Carol Miletti March 25, 2019 11 0

Have I improved since my last post? I dunno. As the experts recommend – you should reboot IF: You can’t access...

by Carol Miletti February 28, 2019 0 1

Let’s celebrate YOU and me today. Remember how you were sick for so long and no one had any idea what was wrong? You...