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My 1 year Sepsis Anniversary- today I’m celebrating ME!

by Carol Miletti July 31, 2019 4 0

So this is where and when it all started for me – exactly 1 year ago today. I was at Mayo Clinic for routine...

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How has summer been so far?

by Carol Miletti July 29, 2019 0 2

Did you go on vacation? Make the family picnic? Take the road trip? If you did – how did it go? Were you able...

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Rare Disease, Summer Fun and Expectations

by Carol Miletti June 28, 2019 0 0

Dear Rare Disease Patient, Whether it’s Primary Immunodeficiency, Myositis, Lupus, MS, RA or any of the delightful...

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Where have I been lately?

by Carol Miletti June 27, 2019 10 0

I’ve been in hiding. I had 1 week at Mayo in May and I came home with HOPE. Even though I didn’t like any of the new...

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IDF National Conference 2019!

by Carol Miletti June 20, 2019 6 0

Feeling a bit nostalgic this evening as I watch my Zebra buds checking in to The IDF National Conference. I’ve been...

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Sometimes, I don’t know

by Carol Miletti May 11, 2019 4 0

What I should be writing about. I don’t want to scare you into thinking that ALL the things that have happened to me...

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THE FLU – are we out of the woods yet?

by Carol Miletti March 29, 2019 0 0

Of course – the answer is NO – not by a long shot. Any chance you’ve had the flu twice this year? If so...

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It’s time to Reboot!

by Carol Miletti March 25, 2019 11 0

Have I improved since my last post? I dunno. As the experts recommend – you should reboot IF: You can’t access...

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Today is Rare Disease Day

by Carol Miletti February 28, 2019 0 1

Let’s celebrate YOU and me today. Remember how you were sick for so long and no one had any idea what was wrong? You...

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Dear Me- I’m just not feeling it

by Carol Miletti February 24, 2019 10 0

Today I’m writing from a deep place- one that I’m seldom in. First of all – please don’t think I’m depressed...

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FLU – It’s getting bad out there

by Carol Miletti February 10, 2019 0 0

Have you had your flu shot yet? If not – NOW is the time. What is flu? A CONTAGIOUS respiratory illness caused...

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Recovery- A Glimmer of Hope

by Carol Miletti January 21, 2019 0 0

Sometime in the past 10 days- I began to see a glimmer of hope. Is this real- as in – am I finally improving?...

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