Hey- it’s the middle of a long 4th of July week-end!

Hope everyone feels well enough to enjoy at least some of it.

 

I wanted to follow-up with the summary of the IDF Conference.  It took me longer than expected.

In my next post, I will tell you what happened this week that caused the delay.

HINT- when the patient becomes the caregiver!

 

If you have never been to an IDF National Conference- you may want to start thinking about the one coming up in 2 years.  It will be just south of Baltimore in June, 2019.

Are they worth it?  How much can I learn? The answer- how much time are you will to give to it?  The meetings and seminars go from 8 – 5 pm. The top Doctors in the field of PI are the speakers- and they are open to talking with YOU.  

Will I learn anything new about treatments? Yes – all of our pharma manufacturers are there with current and upcoming treatment information.

What about the future of treatment? – THIS YEAR – THEY HAD A BOOTH WITH INFO ON UPCOMING GENE THERAPY TREATMENTS!

But, I don’t know anyone.  You will in your first few minutes.  ZEBRAS are the friendliest bunch of people I’ve ever met.  We all have the same thing in common.  We are also there to learn and make new friends.

I don’t have a sitter for my kids.  Guess what- they have kids and young adult programs THE ENTIRE TIME.  You will NOT have to worry about the young ones.  They have more fun than we do.

Is there anything between now and then?

Glad you asked- IDF offers on-going meetings and patient break-outs all year.

There are 2 upcoming IDF TEEN ESCAPES this summer for your PI TEEN!

Next week-end there is a patient ONLY meeting in Baltimore- the schedule is full.

This Fall comes one of my favorite times- the IDF WALKS that take place all across the US.

The purpose is to raise money- but OH – THE FUN YOU WILL HAVE BY PARTICIPATING.

We will be sponsoring a team of walkers in Philly.  JOIN US.

Over the next few months, I will post more detailed info on some of the seminars that were offered.

I also had the privilege of sitting in on a conference call this week on Immune Disease and Autoimmunity- I will post my notes as well.

I’m in the process of finishing up some interviews of patients at the IDF Conference.

Telling their stories may help YOU deal with YOUR story.

If you are interested in telling your story- please let me know.

Here is a link to upcoming events.

http://primaryimmune.org/events-calendar/

Please – don’t be a stranger- I want to hear from you.

C

 

 

 

 

 

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