STRESS and Rare Disease Part 2
I spend quite a bit of time working on reducing stress in my life. Do you? I’ve compiled many articles on...
Read moreI know the QUESTION, How do I get the ANSWER?
I missed blogging last week because my right arm and hand are in a brace. I know I’ve mentioned my...
Read moreHow a book author helped me with my collapsed lung!
Yesterday, I was rearranging some books. I came across one that had saved me in 2008 on a business trip. This was a...
Read moreStress and rare disease – Part 1
Is this you some days? Most days? What are the reasons we get stressed? We know it’s not good for our...
Read moreI’m not telling you it’s going to be easy
I’ve been sad this week. I lost a good friend. I’ve been a patient advocate for 15 years. I’ve...
Read moreInfo about our Immune System
Hi, Some of this info is from LIVE SCIENCE in 2013. I thought it interesting enough to share highlights with you...
Read moreDanger! Think this- not that.
Do you remember me telling you about the IDF CONFERENCE in June? The story hasn’t ended. I had not flown for...
Read moreLet’s Talk about CVID
Have you been diagnosed with CVID? Did you know it’s the most frequest primary immunodeficiency in adults?...
Read moreSUMMER, EXPECTATIONS & REALITY
Oh do we love summer. There is just so much to do- go bike riding, swimming, picnics, walks in the park, head to the...
Read moreTHINK ZEBRA
Do you know why we refer to ourselves as ZEBRAS? Here is the explanation from The IDF. ‘The primary...
Read moreTHIS PATIENT BECAME AN INSTANT CAREGIVER – AGAIN!
Once again, my life was turned upside down. About 8 years ago, my husband had an ischemic stroke in the middle of...
Read moreSummary of my thoughts on IDF CONFERENCE 2017
Hey- it’s the middle of a long 4th of July week-end! Hope everyone feels well enough to enjoy at least some of it...
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