Where have I been lately?
I’ve been in hiding. I had 1 week at Mayo in May and I came home with HOPE. Even though I didn’t like any of the new...
Read moreIDF National Conference 2019!
Feeling a bit nostalgic this evening as I watch my Zebra buds checking in to The IDF National Conference. I’ve been...
Read moreSometimes, I don’t know
What I should be writing about. I don’t want to scare you into thinking that ALL the things that have happened to me...
Read moreTHE FLU – are we out of the woods yet?
Of course – the answer is NO – not by a long shot. Any chance you’ve had the flu twice this year? If so...
Read moreIt’s time to Reboot!
Have I improved since my last post? I dunno. As the experts recommend – you should reboot IF: You can’t access...
Read moreToday is Rare Disease Day
Let’s celebrate YOU and me today. Remember how you were sick for so long and no one had any idea what was wrong? You...
Read moreDear Me- I’m just not feeling it
Today I’m writing from a deep place- one that I’m seldom in. First of all – please don’t think I’m depressed...
Read moreFLU – It’s getting bad out there
Have you had your flu shot yet? If not – NOW is the time. What is flu? A CONTAGIOUS respiratory illness caused...
Read moreRecovery- A Glimmer of Hope
Sometime in the past 10 days- I began to see a glimmer of hope. Is this real- as in – am I finally improving?...
Read moreMy word for the year is RECOVERY! What is your word?
A friend of mine posted a great article by Melinda Gates that really struck a chord with me. In ‘WORD OF THE YEAR’...
Read moreThis is what happened when I got SEPSIS!
The end of July- I was at Mayo for 2 days of routine check-ups. My Dr had increased my methotrexate dose to the...
Read moreStress and rare disease
Is this you some days? Most days? What are the reasons we get stressed? We know it’s not good for our long...
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